Parkinsonism & Related Disorders
Official Journal of the IAPRD
Editor-in-Chief Hubert Fernandez
Featuring basic and clinical research contributing to the understanding, diagnosis, and treatment of all neurodegenerative syndromes in which parkinsonism, essential tremor, or related movement disorders may be a feature. IAPRD members receive complimentary access.
Clinical Parkinsonism & Related Disorders
New companion journal to PRD
Editors-in-Chief Huifang Shang and Daniel Truong
An online-only, open-access journal committed to publishing high-quality peer-reviewed articles related to clinical aspects of movement disorders, including treatment, investigative reports, and phenomenology.
Featured articles in PRD and CPRD journals
Tedeschi R. Automated mechanical peripheral stimulation for gait rehabilitation in Parkinson’s disease: A comprehensive review. Clinical Parkinsonism & Related Disorders Volume 9, 2023, 100219
Automated Mechanical Peripheral Stimulation (AMPS) is a novel rehabilitative technique that targets both peripheral and central sensitivity disturbances observed in Parkinson’s disease (PD) patients. AMPS delivers mechanical pressure stimulations to specific areas of the feet, aiming to correct gait abnormalities and enhance motor performance. The author of this article reviews the available data on the effects of AMPS on gait and motor outcomes in PD patients, and summarizes its potential benefits.
Fernandez HH, Odin P, Standaert DG, Henriksen T, Jimenez-Shahed J, Metz S, Alobaidi A, Yan CH, Kukreja P, Parra JC, Zamudio J, Onuk K, Wright J, Antonini A. Healthcare resource utilization and device-aided therapy discussions with eligible patients across the Parkinson’s disease continuum: Revelations from the MANAGE-PD validation cohort. Parkinsonism Relat Disord. 2023 Nov;116:105514.
Device-aided therapy such as deep brain stimulation or jejunal levodopa gel can improve symptom control and quality of life in patients with advanced Parkinson’s disease (PD). The Making Informed Decisions to Aid Timely Management of Parkinson’s Disease (MANAGE-PD) tool was developed by a panel of movement disorder specialists and international advocacy groups and can help identify eligibility for device-aided therapy. In this analysis, a real-world dataset was used to evaluate the treatment gaps and burden of disease on patients, care partners and society, in patients who are inadequately controlled on their current treatment regimen as categorized with the MANAGE-PD tool.
McDaniels B, Pontone GM, Mathur S, Subramanian I. Staying hidden: The burden of stigma in PD. Parkinsonism Relat Disord. 2023 Nov;116:105838.
Stigma negatively affects the quality of life of Parkinson disease (PD) patients, even in the absence of depression. A number of studies asserts that most people with PD experience stigma during the course of their disease. Stigma is associated with poorer mental and physical health, decreased levels of hope, self-esteem and self-efficacy. In this article, the authors articulate why people with PD encounter significant stigma, explain the relationship between stigma and other common challenges (e.g., loneliness, stress) for people with PD, provide a discussion of how to help manage stigma, and present potential interventions that can help to attenuate stigma.
Marsili L, Kauffman MA, Rufin Florat D, Zaidi A, Botsford V, Sharma J, Keeling EG, Broderick JP, Sumanas S, Espay AJ. Resolving ‘vascular parkinsonism’ –COL22A1 as a genetic adult-onset leukoencephalopathy. Parkinsonism Relat Disord. 2023 Dec; 117:105898.
Dr. Raja Mehanna interviews Drs. Espay, Marsili, and Kauffman on vascular parkinsonism and their recent publication in PRD journal: https://youtu.be/oy9tbPRibBQ
Melvin Yahr Parkinson’s Disease Clinical Research Award
Request for Applications
- Topic: Clinical research into any aspect of Parkinson’s disease
- Applicants: Young investigators under-represented in current research
- Region: International, especially Asia, Africa, and Latin America
- Amount: $50,000 for 1 year
- Deadline: 11 January 2024
- Apply through Proposalcentral.com
- Read full request for applications below
Supported by the Parkinson’s Foundation and International Association of Parkinsonism and Related Disorders
IAPRD Announces the Melvin Yahr Parkinson’s Disease Clinical Research Award
Co-Supported by the Parkinson’s Foundation
Young investigators from around the world are encouraged to apply by 11 January 2024
Mead, WA – October 5, 2023: The International Association of Parkinsonism and Related Disorders (IAPRD) announces a request for applications for clinical research into any aspect of Parkinson’s disease conducted by young investigators who are under-represented in current research.
“We encourage young investigators from around the world to apply for this award, which will recognize and honor their contributions to Parkinson’s disease and its treatment,” noted Dr. Alberto Albanese, President of the IAPRD.
The award seeks to break down barriers and create a more inclusive and diverse healthcare community that will promote the translation of cutting-edge scientific discoveries into practical health measures to benefit people with Parkinson’s disease. This is a 1-year award for a total of $50,000.
The International Association of Parkinsonism and Related Disorders (IAPRD) is a non-profit professional association dedicated to promoting education and research in parkinsonism and related disorders. More information on the award and a formal request for applications can be found at the IAPRD’s website: www.IAPRD-Parkinson.org.
Contact: Mary Ann Chapman, Executive Director; machapman@IAPRD-Parkinson.org; 509-939-4339
IAPRD 2023 Young Investigator Award Winners
Winners will present their studies at the 28th IAPRD Congress in Chicago, 13-16 May 2023 Mead, WA – May 10, 2023: The International Association of Parkinsonism and Related Disorders (IAPRD) recognizes three Young Investigators for their outstanding research in the field:
“These young investigators are performing cutting-edge research in Parkinson’s disease and dystonia that we are pleased to showcase at our Chicago meeting,” noted Dr. Mary Ann Chapman, Executive Director of the IAPRD.
Dr. Lin will present the results of her large cohort study of the AOPEP gene, a novel causative gene of autosomal recessive dystonia. Dystonia is a neurological condition of involuntary muscular contractions that lead to repetitive or twisting movements often of the neck or limbs. Mr. Royton will present the results of his study on postural control in Parkinson’s disease, focusing on the staging of postural control changes over the course of the disease. Dr. Torres Ballesteros will describe the results of her study on deep brain stimulation in Parkinson’s disease, and specifically the use of image-guided programming to help improve patient responses.
The International Association of Parkinsonism and Related Disorders (IAPRD) is a non-profit professional association dedicated to promoting education and research in parkinsonism and related disorders. The IAPRD’s 28th World Congress will take place in Chicago at the McCormick Place Congress Center from 13-16 May 2023. Visit https://www.iaprd-world-congress.com for more information.
Contact: Mary Ann Chapman, Executive Director; machapm@comcast.net; 509-939-4339
Contact Info
Mead WA 99021-9477Phone: (509) 939-4339
Email: Secretariat@IAPRD-Parkinson.org
Non Profit ID: 83-4434132